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Breakthrough on PD Patient Care

A dream for many of us is coming true in Ohio. OhioHealth, a nonprofit medical system, just announced construction of a 30,000 square foot, $12.1 million wellness center in Columbus. (Details below.)

The focus is PD and related maladies. It will be one-shop stop for “living well” necessities, such as exercise, diet and sociability.

The Me-Over-PD initiative in Tampa envisions such a center as the next step after patients are empowered with vital, local, self-care information. Similarly,  Benzi Kluger’s and Kirk Hall’s  team-based, palliative-care field test in Colorado, California and Alberta points in the same direction.

Michael Okun at the University of Florida is raising funds for a similar center at the University of Florida. Center planning is underway in Denver and Boulder, CO. David Riley’s recent InMotion center in Cleveland, Ohio, operates on similar lines. So does Parkinson’s Place in Sarasota, FL.

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“Less than three years after opening the doors to the state-of-the-art OhioHealth Neuroscience Center at OhioHealth Riverside Methodist Hospital, OhioHealth is proud to announce plans for a first-of-its-kind neuroscience wellness center. The center will be located near the Riverside Methodist Hospital campus.

“The neuroscience wellness center will extend OhioHealth’s continuum of care for those living with neurological conditions – such as Parkinson’s, stroke, multiple sclerosis and others – by providing them with programs, equipment, education, and experts in prevention and rehabilitation to help manage their conditions and live more active lives.

‘”A patient’s care doesn’t stop when they leave the hospital or the doctor’s office,” said Dr. Janet Bay, system vice president, OhioHealth Neuroscience. ‘They need to stay active and fit in mind and body – physically, mentally, and spiritually. Our neuroscience wellness center represents our best vision for a place that can be the center of all of that for them. As leaders, locally and nationally, in the treatment of neurological conditions, our new center will impact patient’s lives in a new way and we are so very proud to be bringing it to those who will benefit from it.’

“Programs and classes at the center will include exercise, nutrition, stress reduction, yoga, caregiver support programs, and more. Additionally, it will bring already-established OhioHealth wellness programs, such as OhioHealth Delay the DiseaseOhioHealth Fore Hope, the OhioHealth MS Wellness Program, Staying Fit Following Stroke and Brain Injury and Gerlach Center for Senior Health clinics under one roof. The center will also serve as an incubator for development of new programming

‘”We have made a tremendous commitment to neuroscience in the communities we serve,” said Dave Blom, president and CEO of OhioHealth. “We have a passion for giving patients and their families the very best healthcare, no matter where they are on that journey. We believe wellness is a significant part of that journey and that the new neuroscience wellness center will be a big step forward in that area.’

“Preliminary plans call for a 30,000 square-foot facility including, but not limited to;

  • Two large multipurpose fitness studios that can be split for simultaneous classes
  • Indoor cycling (spinning) studio and indoor walking trail
  • John J. Gerlach Center clinic programs and support services specifically for older adults
  • An outdoor program area located immediately outside of the building

The new facility will cost $12.1 million to design and build with $10 million of that coming from the Building Strength for Life campaign led by the OhioHealth Foundation. The generous McConnell Foundation gift of $6 million represents 60 percent of that goal. Construction is expected to be complete in the next two years.

‘”We are pleased to be involved in such a critical and groundbreaking approach to wellness care in the field of neuroscience,’ said John P. McConnell, Chairman and CEO of Worthington Industries. “Our family believes in the vision of OhioHealth in providing exceptional care in the communities they serve. The neuroscience wellness center is another example of their leadership on healthcare issues that are important to all of us.’

“The McConnell family’s long-standing philanthropic partnership with OhioHealth spans nearly 30 years. Generous gifts from the McConnell Foundation, which now total more than $25 million dollars, have been instrumental in leading and advancing medical care innovations at OhioHealth. This latest gift will continue to ensure the OhioHealth neuroscience mission of delaying the progression of disease, improving outcomes, and reducing costs.

‘“We are filled with gratitude to the McConnell family for this extraordinary gift to support our neuroscience wellness center and the people who will benefit from the services,” said Karen Morrison, president of the OhioHealth Foundation and senior vice president, OhioHealth. ‘“We are inspired by the passion, dedication and generosity of John P. McConnell’s unwavering commitment to OhioHealth and to this community.’”

 

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Stress: PD’s Best Friend

I came across a cool column I share on the stress bugaboo.

Also, my new Georgia license late just arrived. SHFL ED.

Giggles!

When Living With Parkinson’s, Ax the Stress

When Living With Parkinson’s, Ax the Stress

Sherri Journeying Through

Stressed. This is what my thesaurus had to say: “To ‘stress’ is to emphasize.” Emphasize what? The fact that your life is out of control? The fact that you’re not handling things well?

Being “under stress” means that these two elements are wearing on you — being out of control and not handling things well. However, there is still some control. A minute amount, but then, are we ever really in control?

Perhaps something, somewhere, somehow, in some way is insisting on driving you crazy. More than likely it is we, ourselves, who are driving “us” crazy. We are the ones who insist on allowing something or someone, in some way, to get to us, to rob our joy.

For example, as I write this my husband and I are driving on Interstate 10, going from Phoenix to Los Angeles. We are going the speed limit at 75 mph. A Chevy Blazer with a roof rack piled high with camping gear and a back window with a sticker that says, “Desert Center Fellowship,” plus a license plate that reads “PASTOR,” zooms past. It is definitely exceeding the speed limit of 75 mph. This is after he has been tailgating us, we who are behind a semi-truck that is exceeding his speed limit. The first semi-truck pulls in front of another semi that is passing us on the right, then quickly passes the one in front of us and then pulls in front of him, cuts over to the left of him, and pulls in front of another car. It is moments such as this that drivers tend to get stressed.

I continue writing as my husband continues to drive. Approximately 10 minutes later, from out of nowhere, the Pastor of Desert Center Fellowship zooms by us once more, and once more, he swerves to the right to pass a car that is dawdling down I-10 at the much-too-slow speed of at least 85 mph.

Now, many drivers I know would be stressed by now. They are not merely under stress. They are stressing out big time, and at this point, it is their choice. At times like these in our lives, we allow stress to rob our joy. We allow situations and other people to insist on their agendas, hammer home their opinions, spotlight on the negative, underline our failures, dwell on our mistakes.

You know what I’ve learned that was refreshingly reminded to me today? People like “Pastor Desert Center Fellowship” don’t cause my stress. I do. Things like being cut off in traffic don’t cause my stress. I do. Situations like dirty dishes in the sink left for me to do don’t cause my stress. I do. I allow myself to “climb under” this stuff  — because I choose to. I choose to let it get the best of me and drag me down so that I fit under it, let it cover me, and dwell fitfully within it as it wraps its not-so-warm, fuzzy blanket around me. I have allowed it to define my moment, my day. I have become the “s” word: Stressed out.

I am so grateful God has not given up on me, that He still finds me teachable. I am grateful I have learned not to always give in to stress, as was once so easy to do. Now I am much quicker to recognize the hold it strives to have on me. If I allow it to cover me, if I climb under it, before I know it, I am not just “under” stress; it has begun to consume me, define me, highlight my life, insist on having its way, and ultimately, I have allowed it to steal my joy.

Disease. Loss. Pain. Financial burdens. Relationships. All things in life that can create stress, if we allow them. We cannot control everything, if anything. Stress allows us to deal with this “life” — this disease — ineffectively. What is effective? I have found two things to be most effective for me: Forgiveness and thankfulness.

I had a current, ongoing situation that had been stressful for me. After talking to a good friend recently, I realized I hadn’t forgiven the person with whom I had been struggling. I’d allowed the pain to grow because I’d sought control instead of forgiveness. I had allowed the situation to highly frustrate me, and at times, rob my state of mind, my joy.

Forgiveness! Do they deserve it? Not my call. Do I need to do it? You bet. By forgiving, I can find things in that situation for which to give thanks, and by doing that, my focus returns to its proper place — on God being in control. When the right perspective is there, joy overflows.

Is forgiveness easy? No way. Is it necessary? For me, yes. I don’t like the word that starts with an “s” and if I refuse to forgive, refuse to see the hard things in life to be thankful for, that “s” word takes control, consumes my joy, and I am nothing more than … stressed.

That isn’t where I choose to live. Joy is a much better state of mind and with all that a person who has  Parkinson’s has to deal with, don’t you think that’s a better place to be? Living with joy and axing the stress in your life?

Sherri was diagnosed with Young Onset Parkinson’s disease over fifteen years ago. She can be found working in her garden, going for walks, taking pictures, or reading books to her three favorite grandkids.