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ITEMS FROM THE SHUFFLING EDITOR’S INBOX

HAUSER TESTING INSTANT RX FOR PD OFF TIME

In case you missed the recent Times story on Dr. Robert Hauser’s clinical trial of breath strips of apomorphine, here it is. Reporter Kathleen McCrory did an exemplary reporting and writing

UPDATE ON PALLIATIVE CARE PROJECT

I’ve written before on the Denver-led, international trial of a redesigned and reconceptualized Palliative care model for PD. Here’s an update on their progress.

“This is a multi-center, randomized controlled clinical trial aimed at determining if an outpatient, multidisciplinary, supportive care clinic that incorporates the principles of palliative care can help improve quality of life for people with PD and reduce caregiver stress. In our study, people with PD randomized to the Treatment Arm will receive care over the period of a year in the Parkinson’s Disease Supportive Care Clinic, which includes care from a movement disorder trained neurologist, a nurse specializing in the care of people with Parkinson’s disease, a social worker, a palliative chaplain, and a palliative care specialist. These individuals will continue to receive usual care from their primary medical doctor and their primary neurologist, at the same me they get palliative/supportive care from our team. Those people with PD randomized to the Usual Care Arm will contribute to data collection every three months. These individuals will also continue to receive usual care from their primary medical doctor and their primary neurologist. “

DIANE AND JOHN REHM’S BRUTAL JOURNEY

Diane Rehm hosts an NPR public affairs radio show. Her husband John Rehm suffered from PD at his death. Diane discussed his final years in heart-rending detail. He ended his life by refusing water and food for 10 days.

The story left me wondering what kind of PD support network the Rehms had. The podcast is not for the faint hearted, but it is riveting.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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